It's hard to
begin the story though, I daily live again the moments when I thought I was
losing my baby. All this evil has been caused by a gynecologist who did not see
that for a month and a half in my belly there was a baby with triple circular
of umbilical cord.
Stefan Adrian is the wonder who was born on October 3, 2010, after suffering terrible womb pains that the gynecologist did not bother to notice after the labour prolonged by the doctor in the emergency department of Constanta county hospital.
This child wanted and loved by everyone, has a story as sad as his own life.
I’m saying that because at 1 year and 3 months, when other little children walk, talk and play with toys, Stefan does not even keep his head stable.
I chose Mrs. Elvira Solopenko as a doctor responsible for the smooth running of my pregnancy, after many recommendations, but it all proved to be undeserved praise.
A few hours before the labor, I went for a checkup and told her that I had not been feeling the baby moving for some time and I was worried that the baby weighed the same 1500 grams for six months.
She said that everything was okay, the baby was laughing and that I should not worry about the weight as he had enough time to grow. We agreed on an appointment for the next week to discuss the visit I had to take at the Isis clinic, where I was supposed to deliver.
I left relatively content for the doctor had monitored my pregnancy since the second week twice a month; I had done a morphology and a 4D echo in week 28 and everything seemed normal.
I came home and soon started contractions, so, scared, I went to the emergency and once there the ordeal started.
The emergency doctor confirmed my fears: I was about to give birth.
Naturally I called my gynecologist, who answered the phone after two hours of persistence only to tell me what she had failed for 34 weeks: she no longer worked in the hospital and she could not take me to Isis where they had no equipment for premature babies: and here I was in front of a premature birth, no doctor, in the County Hospital where the conditions are far from the best.
The doctor insisted that I was to be sent to the emergency department after receiving from me “the most part of the chocolate” and after receiving it they wanted that those who accompanied me should go and buy cigarettes and again they wanted a “bigger chocolate” and so on until 6 am when Dr. Solopenko, in a crisis of conscience, had the idea to call the doctor in the ward, who in turn called the emergency and asked that I should be sent for the caesarean section.
Just in time because, as I was later told, only 10 minutes separated us from death, both me and the child.
On the morning of October 3, at 6.15, Stefan was born.
I do not want anyone to go through the shock I had when I saw my baby of 1500 grams and 30 cm, with a tiny and purple head and a body with soft skin like marble through which you could see all his internal organs.
They looked at one another for a few seconds, then they probably made me sleep after seeing the condition I was seen.
When I woke up the neonatologist came and told me that the baby received a 5 at birth but he had no chance of survival. Then my soul was empty, I felt nothing, not even pain. My child was going to die!
After two days I was left to see him and they informed me that he contacted a virus. An e-coli endangered his life even more. They tried to convince me that it had been taken from the uterine environment, but I did not believe that. I asked for the results of my analysis and it proved they were clearly lying. The tests went out well, and I know that an e-coli during pregnancy would have affected me not only the child. They were clearly lying!
Then I realized that I must do something to save my child, from their part, he would not have had any chance of life.
They kept him on cefort infusion for a week, but he had high temperature under the influence of the antibiotic and nobody could tell me why.
I decided not to give up, and every minute I was the cabinet’s door to ask for explanations.
I daily asked the doctor what I could do for my child, what treatment might help and at some point probably they realized they could not get rid of my insistence until telling me what to do. There was however something strange about their behaviour and I did not understand what.
Later, at the suggestion of other parents who went through the same tragedy I asked that the child should be tested at a private laboratory chosen by me and I understood why nobody told me anything.
The child did not have the e-coli but a rare virus, contacted form the hospital, serrattia, which was destroying his small and fragile body with every second.
They preferred to let a child die than tell me that he got worse in such a lousy hospital.
I saw the neonatologist and informed him that I had no intention to sue anyone, I just wanted to know what treatment should be applied to save my child.
Only then did they give me the receipt for Tienam and Amikacin, two very powerful antibiotics, hard to find but which seemed to have an effect.
I prayed to God to help Stefan to live and one night I decided to have him baptized there in the hospital.
I brought a priest who baptized him in the incubator, blindfolded as he had jaundice and he was full of needles and connected to the oxygen machine but the important thing was that I managed to have him baptized.
I'm sure that at that moment God decided to fight for his life and he succeed because starting the next day he had no fever and no apnea crisis as he had had until the day of baptism.
After 3 weeks of torture Stefan was better, his analysis came clean and he lived even if he ate 3 ml of milk.
For another two weeks I sat beside the incubator and with the doctor’s agreement I was the only one to take care of my baby. I fed him through gavage, washed him with tea and gave him a massage. He was beginning to have the color and shape of a baby.
Before discharge, we asked doctor Ciofu to have an echo of him and to our joy, she said everything was ok.
We were discharged on request after 5 weeks fearing that he may catch another disease as his immunity was virtually equal to zero. The doctor considered that we could go home, him weighing 1,800 grams, since I was ready to care of him on my own.
I thought everything that was bad had passed. At 2 months I took Stefi for an eyesight medical checkup to Dr. Turu, as the first checkup was done at one month and a week when I asked to be taken by ambulance to the doctor's office.
Stephen was diagnosed with second degree PAR at both eyes, but there no signs that it would grow to a greater degree. We were recommended to go to Bucharest for a second opinion. At IOMC in Bucharest my baby was registered and kept under observation by Dr. Vatafu and with God's help the retinopathy was reabsorbed.
We had come through again.
The greatest tragedy only started just when I thought there could not have been anything more to happen.
Coming out of the ophthalmology cabinet, I saw the echography cabinet and I decided for my peace it would be better to repeat the transfontanelar echo.
Fortunately I found Prof. Dr. Anca Ioana, who I knew to be the best in the field and I asked her to receive us without an appointment. Nothing could have prepared us for what she would tell us: periventricular leukomalacia third degree, the child will walk and talk later, but we could do anything. Just wait.
That put an end to our twice a week journey to Bucharest for the eyes and we started the monthly ones for the transfontanelar echo. Meanwhile I searched the internet and what I found Stefan's illness was devastating: cerebral paralysis.
We did the first MRI that revealed other brain injuries.
I was devastated but equally determined not to give up.
One day the child began to throw up, and the next day it was worse. He did not manage to swallow the food because he got sick and threw up, these instances happening more and more often.
I started other investigations and hospitalizations both in Bucharest and Constanta but nobody knew what it was. I put everything down to the neurological problems especially that he had some unnatural startling before falling sleep.
When he was 4 months we were hospitalized at Obregia, Dr. Craiu being the one who took the case over.
We made the first EEG and the route was normal and nobody understood why he startled or threw up.
After a week we were discharged and arrived in Constanta, but we were still in the hospital as the throwing up did not stop and and the analyses showed no infectious nature problem.
Luckily, we met Dr. Balasa who thought he might be allergic to any food.
She had been right, but he was not allergic to one but to almost everything: milk protein, lactose, gluten, egg, meat and soy. Another difficulty to be overcome but we managed, although that meant the stagnation of the weight.
Stefan did Bobath therapy, and at 7 months he started Vojta therapy. Everything seemed normal until one day when he started having some terrible spasms and he was not there.
I immediately saw Dr. Stoian, Stefan’s neurologist; she suspected in that moment that something was wrong with him and she made an emergency appointment at the EEG.
Her fears were true; the child had epilepsy, and not any kind. It was the West syndrome, that terrible syndrome that leads to the loss of acquisitions made by the child if not diagnosed in time and could not be mastered with hyperbaric anticonvulsive treatment.
Another ordeal, perhaps the worst.
I restarted the trips to Obregia Hospital for EEG; we went there for monthly check-ups.
This month we repeated the MRI, and anesthesia, stress and fear again.
But God clearly loves Stefan. The EEG seems normal and seizures have not occurred; it has been the best thing ever so far.
Stefi is 1 year and 3 months and his angel's life has been spent in hospitals for all sorts of investigations.
I keep thinking that his life would have been otherwise if the gynecologist had been involved and responsible, if the emergency physician had not prolonged the labor, and so on. . . . . . . .
It is said that God does not give you more than you can handle. It means that I can fight to save my child, even if at 1 year and 3 months his development is not more than that of a 2-3 month-old child.
Stefan is strong, he loves life and does everything to live.
Together with the team of doctors and the therapist dealing with his motor recovery, we will fight this disease as much as we can.
I do not lose hope that Stefan will walk and call me mother once.
Stefan Adrian is the wonder who was born on October 3, 2010, after suffering terrible womb pains that the gynecologist did not bother to notice after the labour prolonged by the doctor in the emergency department of Constanta county hospital.
This child wanted and loved by everyone, has a story as sad as his own life.
I’m saying that because at 1 year and 3 months, when other little children walk, talk and play with toys, Stefan does not even keep his head stable.
I chose Mrs. Elvira Solopenko as a doctor responsible for the smooth running of my pregnancy, after many recommendations, but it all proved to be undeserved praise.
A few hours before the labor, I went for a checkup and told her that I had not been feeling the baby moving for some time and I was worried that the baby weighed the same 1500 grams for six months.
She said that everything was okay, the baby was laughing and that I should not worry about the weight as he had enough time to grow. We agreed on an appointment for the next week to discuss the visit I had to take at the Isis clinic, where I was supposed to deliver.
I left relatively content for the doctor had monitored my pregnancy since the second week twice a month; I had done a morphology and a 4D echo in week 28 and everything seemed normal.
I came home and soon started contractions, so, scared, I went to the emergency and once there the ordeal started.
The emergency doctor confirmed my fears: I was about to give birth.
Naturally I called my gynecologist, who answered the phone after two hours of persistence only to tell me what she had failed for 34 weeks: she no longer worked in the hospital and she could not take me to Isis where they had no equipment for premature babies: and here I was in front of a premature birth, no doctor, in the County Hospital where the conditions are far from the best.
The doctor insisted that I was to be sent to the emergency department after receiving from me “the most part of the chocolate” and after receiving it they wanted that those who accompanied me should go and buy cigarettes and again they wanted a “bigger chocolate” and so on until 6 am when Dr. Solopenko, in a crisis of conscience, had the idea to call the doctor in the ward, who in turn called the emergency and asked that I should be sent for the caesarean section.
Just in time because, as I was later told, only 10 minutes separated us from death, both me and the child.
On the morning of October 3, at 6.15, Stefan was born.
I do not want anyone to go through the shock I had when I saw my baby of 1500 grams and 30 cm, with a tiny and purple head and a body with soft skin like marble through which you could see all his internal organs.
They looked at one another for a few seconds, then they probably made me sleep after seeing the condition I was seen.
When I woke up the neonatologist came and told me that the baby received a 5 at birth but he had no chance of survival. Then my soul was empty, I felt nothing, not even pain. My child was going to die!
After two days I was left to see him and they informed me that he contacted a virus. An e-coli endangered his life even more. They tried to convince me that it had been taken from the uterine environment, but I did not believe that. I asked for the results of my analysis and it proved they were clearly lying. The tests went out well, and I know that an e-coli during pregnancy would have affected me not only the child. They were clearly lying!
Then I realized that I must do something to save my child, from their part, he would not have had any chance of life.
They kept him on cefort infusion for a week, but he had high temperature under the influence of the antibiotic and nobody could tell me why.
I decided not to give up, and every minute I was the cabinet’s door to ask for explanations.
I daily asked the doctor what I could do for my child, what treatment might help and at some point probably they realized they could not get rid of my insistence until telling me what to do. There was however something strange about their behaviour and I did not understand what.
Later, at the suggestion of other parents who went through the same tragedy I asked that the child should be tested at a private laboratory chosen by me and I understood why nobody told me anything.
The child did not have the e-coli but a rare virus, contacted form the hospital, serrattia, which was destroying his small and fragile body with every second.
They preferred to let a child die than tell me that he got worse in such a lousy hospital.
I saw the neonatologist and informed him that I had no intention to sue anyone, I just wanted to know what treatment should be applied to save my child.
Only then did they give me the receipt for Tienam and Amikacin, two very powerful antibiotics, hard to find but which seemed to have an effect.
I prayed to God to help Stefan to live and one night I decided to have him baptized there in the hospital.
I brought a priest who baptized him in the incubator, blindfolded as he had jaundice and he was full of needles and connected to the oxygen machine but the important thing was that I managed to have him baptized.
I'm sure that at that moment God decided to fight for his life and he succeed because starting the next day he had no fever and no apnea crisis as he had had until the day of baptism.
After 3 weeks of torture Stefan was better, his analysis came clean and he lived even if he ate 3 ml of milk.
For another two weeks I sat beside the incubator and with the doctor’s agreement I was the only one to take care of my baby. I fed him through gavage, washed him with tea and gave him a massage. He was beginning to have the color and shape of a baby.
Before discharge, we asked doctor Ciofu to have an echo of him and to our joy, she said everything was ok.
We were discharged on request after 5 weeks fearing that he may catch another disease as his immunity was virtually equal to zero. The doctor considered that we could go home, him weighing 1,800 grams, since I was ready to care of him on my own.
I thought everything that was bad had passed. At 2 months I took Stefi for an eyesight medical checkup to Dr. Turu, as the first checkup was done at one month and a week when I asked to be taken by ambulance to the doctor's office.
Stephen was diagnosed with second degree PAR at both eyes, but there no signs that it would grow to a greater degree. We were recommended to go to Bucharest for a second opinion. At IOMC in Bucharest my baby was registered and kept under observation by Dr. Vatafu and with God's help the retinopathy was reabsorbed.
We had come through again.
The greatest tragedy only started just when I thought there could not have been anything more to happen.
Coming out of the ophthalmology cabinet, I saw the echography cabinet and I decided for my peace it would be better to repeat the transfontanelar echo.
Fortunately I found Prof. Dr. Anca Ioana, who I knew to be the best in the field and I asked her to receive us without an appointment. Nothing could have prepared us for what she would tell us: periventricular leukomalacia third degree, the child will walk and talk later, but we could do anything. Just wait.
That put an end to our twice a week journey to Bucharest for the eyes and we started the monthly ones for the transfontanelar echo. Meanwhile I searched the internet and what I found Stefan's illness was devastating: cerebral paralysis.
We did the first MRI that revealed other brain injuries.
I was devastated but equally determined not to give up.
One day the child began to throw up, and the next day it was worse. He did not manage to swallow the food because he got sick and threw up, these instances happening more and more often.
I started other investigations and hospitalizations both in Bucharest and Constanta but nobody knew what it was. I put everything down to the neurological problems especially that he had some unnatural startling before falling sleep.
When he was 4 months we were hospitalized at Obregia, Dr. Craiu being the one who took the case over.
We made the first EEG and the route was normal and nobody understood why he startled or threw up.
After a week we were discharged and arrived in Constanta, but we were still in the hospital as the throwing up did not stop and and the analyses showed no infectious nature problem.
Luckily, we met Dr. Balasa who thought he might be allergic to any food.
She had been right, but he was not allergic to one but to almost everything: milk protein, lactose, gluten, egg, meat and soy. Another difficulty to be overcome but we managed, although that meant the stagnation of the weight.
Stefan did Bobath therapy, and at 7 months he started Vojta therapy. Everything seemed normal until one day when he started having some terrible spasms and he was not there.
I immediately saw Dr. Stoian, Stefan’s neurologist; she suspected in that moment that something was wrong with him and she made an emergency appointment at the EEG.
Her fears were true; the child had epilepsy, and not any kind. It was the West syndrome, that terrible syndrome that leads to the loss of acquisitions made by the child if not diagnosed in time and could not be mastered with hyperbaric anticonvulsive treatment.
Another ordeal, perhaps the worst.
I restarted the trips to Obregia Hospital for EEG; we went there for monthly check-ups.
This month we repeated the MRI, and anesthesia, stress and fear again.
But God clearly loves Stefan. The EEG seems normal and seizures have not occurred; it has been the best thing ever so far.
Stefi is 1 year and 3 months and his angel's life has been spent in hospitals for all sorts of investigations.
I keep thinking that his life would have been otherwise if the gynecologist had been involved and responsible, if the emergency physician had not prolonged the labor, and so on. . . . . . . .
It is said that God does not give you more than you can handle. It means that I can fight to save my child, even if at 1 year and 3 months his development is not more than that of a 2-3 month-old child.
Stefan is strong, he loves life and does everything to live.
Together with the team of doctors and the therapist dealing with his motor recovery, we will fight this disease as much as we can.
I do not lose hope that Stefan will walk and call me mother once.
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